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Griffin's Journey
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Forum Posts: 19
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29 April 2020 - 5:17 pm
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Hi Stacy,

It’s awesome to see Griffin doing so great!! I’m relieved to hear your story regarding chemo and the clinical trial with Yale. We have actually been researching the exact same thing and debating on what to do. I’m meeting with my vet on Friday to determine the best approach, but I believe we will doing something similar to you: chemo and then vaccine. With the clinical trial, if nothing else, I hope we can contribute to the research for successful therapies for future osteosarcoma patients.

Xx

Finn and Casey

Southern California
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29 April 2020 - 8:50 pm
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Hi Stacy,

Griffin is getting around so well! I hope everything goes well with the chemo. Like many things, sometimes the more options you have, the more difficult it can be to have confidence that you’re on the right track. But it seems like you and Griffin have an awesome team working together for the best possible outcome.

Oh, and his wagon is even cooler than I imagined!

Shane and Aspen

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30 April 2020 - 11:53 am
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     Ziva and I are watching this close. Griffin has been our inspiration to keep moving forward. Griffin is a major rock start when it comes to this stuff. Watching your guys progress is amazing. Keep up the great work and stay safe. 

   

New York, NY
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30 April 2020 - 2:13 pm
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Hi Casey!  It was when I read your initial post that I discovered the Yale clinical trial, so thank you!  I’ve spoken with the trial coordinator and I’m grateful that aside from the cost of 2 office exams, there won’t be any cost by traveling to the clinic.  I don’t know if you had the chance to see my post in the “Ask a Vet” forum under the “Chemotherapy Protocols” topic, but I added information from emails I exchanged with Griffin’s oncologist.  She supports additional rounds of chemo, but I really want to give the vaccine a shot (Ha! No pun intended!), so we might resume chemo after he finishes the vaccine protocol.  I’d love to know what you vet thinks.  I hope Finn is doing well!  ~ Stacy

Hi Shane!  Your Instagram photos of Aspen are so stinkin’ cute, they make me want to get better at social media!  Griffin’s wagon is a pretty sweet ride.  The sides are high enough to allow him to lean up against them and with a thick mat folded at the bottom, he is pretty darn comfortable.  And I certainly get a workout pulling him for a mile!  And you are so right about the options!  At one point, I just really wanted someone to tell me what to do!  I’m glad that Griffin’s oncologist was so patient answering my many emails and I feel comfortable that my decision accounts for and balances all considerations.  I can’t wait for more updates on Aspen!  ~ Stacy

Hi Steve!  Thanks for the kind words!  I am so immensely grateful to the Tripawd family and appreciate so much that Griffin can serve as an inspiration to others.  I love that we have a chance to pay it forward and make new friends along the way!  Please post videos/photos of Ziva soon! ~ Stacy

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30 April 2020 - 4:04 pm
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Our feeling is we have nothing to lose and I’m excited to participate in something “bigger” that can hopefully help with better dog and human therapies!

We actually are considering doing the vaccine prior to starting chemo. I have our follow-up appointment with our regular vet and I’m going to go through everything with him. I’ll probably do a blog post tomorrow detailing the route we decide.

Thank you! He is doing much better now that we’ve tweaked his meds. 

New York, NY
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30 April 2020 - 4:09 pm
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Czar went the same route, but I think it was more due to logistical issues starting chemo than a preference.  We had already started chemo by the time I learned about the vaccine, and neither our oncologist nor Dr. Mamula (running the clinical trial) recommends pausing chemo to administer the vaccine.  I’m super interested to learn what you decide to do!

New York, NY
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30 April 2020 - 4:20 pm
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Today’s update is a tale of two parks.  While most people think of NYC as being skyscrapers and subways, we live in Inwood, the northernmost neighborhood of Manhattan, which is very residential and has a lot of green space.  Griffin has lived here his whole life and I’ve been a resident since 1994.

This morning we went to our local vet for a blood test to check Griffin’s complete blood count (CBC) 2 weeks after chemo to ensure his red/white blood cells and blood platelets levels have not dropped (they were fine when checked last week but can change in week 2 after chemo).  It was raining lightly when we left and then it poured during our 5 block walk to the clinic.  The technician was super fast with Griffin and we were out within 5 minutes!  It had stopped raining while we were in the clinic and a few minutes after heading back home, the skies opened up again.  Since we were already wet, we took a detour on the way home through Inwood Hill Park.  In the video below, you can see Griffin navigating in the rain.  Listen until the end – Griffin is totally the boy who would make rude noises in class to make his friends laugh and get away with it because he is so cute!

This afternoon, we headed to Fort Tryon Park.  It was pretty windy and Griffin didn’t seem too interested in walking or exploring.  He did pose under a cherry blossom tree where the rain/wind created a carpet of petals.  He also practiced walking down stairs.  He walks down the 4 steps in our lobby pretty easily and can walk up a full flight of stairs, but until today, he had not walked down a full flight of stairs.  While we were at the park, Griffin practiced on two different sets of stairs which were deeper than the ones in my apartment building, leaving more room for his back legs to step down while his front leg is still on the stair.  The video below shows an enormous flight of steps up to the Cloisters – Griffin only practiced on the last section.  Clearly I was more excited than he was!

Sitting pretty among the cherry blossom petals!
Griffin’s smile belies his annoyance with me for asking him to lay down under the cherry blossom tree!

Virginia




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30 April 2020 - 5:05 pm
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HAHAHA!!  Griffin sure is our  Class Clown joy maker today!! 🤣😂  Love his little burp!  He pulls it off with sich style!! 😎  At first I thought he stopped to take a little breather (and he may have).  But I also think he stopped to let oit a good burp!

Glad to hear all his blood work came out just fine.  Good news!  Bummer about all the off and on rain though.  Clearly Griffin  knows how to dress for the weather though.  Such a Fashionista!

That picture of Griffin in  the Cherry Blossoms  is absolutely  beautiful!!   Coffe table book cover beautiful!!!  And he gets an extra cookie for being willing to lay down in the flowers to make a pretty pocture for us hoomans!  Such a good boy!  A really good vou!😊

Hugs

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

New York, NY
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1 May 2020 - 6:31 pm
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Check out today’s forum post on Griffin’s Journey Blog (the photos show up better)!

series-of-Griffin-photos-blog-e1588381726873.pngImage Enlarger

We got good news today!  Griffin’s blood test results came back and while his white blood cell and platelets counts have dropped (as is expected with chemo), they are still within the normal range.  This was the second blood test run after his first round of chemo, and with no concerns with either, he should not need any additional blood tests after future rounds of chemo.  His second round is scheduled for May 15th and I hope he sails through with no side effects like he did with the first round of chemo!

Our walk this morning was a rainy one, but that did not stop Griffin from rolling in the soggy grass multiple times – and looking quite proud of himself when doing so!  Fast forward 8 hours and the sun was shining brightly, so of course that meant more rolls in the grass!  Below are photos of drenched Griffin after our morning walk and us enjoying the sunshine together this evening!  And rounding out today’s post are videos of his soggy morning and sunshiny evening romps!

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Virginia




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1 May 2020 - 7:11 pm
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I’m not sure who jasnthebigfest smileuoi are Griffin!!   I know one thing for sure, these pictures AND great update makes us all smile!!!,😁😁

I just love seeing dogs rolling on their backs getting good scratches and “connecting with the earth”….even if the ground is soaking wet!!!   And he is good looking whether he’s soaking  wet or not!!

The joy  Griffin shows in   the video  is so uplifting to see.  He definitely  is enjoying being Griffin😎   You two are so bonded and having g the best time  making the most out of every moment!!❤

Hugs

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

Virginia




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1 May 2020 - 7:15 pm
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Okaaaay….thought I’d lost what little bit of  mind I had left! 🤣😂🤣😂 When I first started typoing my reply (and it is NOT a feat I can do quickly), there were several pictures of Griffen rolling arou d happily on his back.  Then they were fone….noe they are back but in a different  form!!  Okay, figured oit you’re making adjustments! Such  a relief!!!🥵🤑

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

New York, NY
Forum Posts: 519
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1 May 2020 - 7:26 pm
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Sorry, Sally!  I’m a bit of a perfectionist and the photos were not showing up on the forum post as nicely as they do on the blog, so I kept re-editing the post (and I’m still not quite satisfied).  I saw you were on the page and kept thinking, “I hope Sally isn’t trying to reply as I’m making changes!”  icon_lolsp_hearticon2 Stacy

Forum Posts: 183
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1 May 2020 - 9:10 pm
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LOVE all the photos and videos! Griffin looks so happy 🙂 

I read about your decision in the end for treatment. All of this seems to me a very good plan. I really wish the clinical trial for the vaccine would be available in Canada. Without the travelling restriction I might have considered travelling there (it would be feasible from Qc, 6 hours I believe). I don’t know if Arktik would be eligible. I might investigate on that side. 

The Rainbow Bridge



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2 May 2020 - 11:46 am
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Congrats on the terrific lab work! smiley16What a relief to get that over with, your boy is as strong as ever. 

What a treat to watch him rolling in the grass, rain or shine, it’s a lesson for all of us! He just doesn’t care what the weather is doing, all that matters is he’s outside and enjoying some fresh air. You two look so happy! 

Gonna hop over to the blog to check it out. If you ever have technical questions just drop us a line, we are happy to help. And thanks again for your generous support! 

It's better to hop on three legs than to limp on four.™
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New York, NY
Forum Posts: 519
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2 May 2020 - 12:12 pm
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Hi Patricia – You should definitely check out more information about the Yale clinical trial if you are interested.  Dr. Mark Mamula (mark.mamula@yale.edu) is leading the trial and answered my emails quickly.  There is the possibility of having the vaccine sent to your local vet to administer, but that costs $1,000 in addition to the office visits to administer the vaccine, plus follow up blood tests.  If you are able to travel to The Veterinary Care Center (203-838-6626) in Norwalk, CT, there is no cost for the vaccine or blood tests (just 2 exam charges).  Deborah Bascome (Deb@vcchope.com) is the trial coordinator and was very helpful when I spoke to her on the phone.  One requirement is to finish chemo, although I think Paul (Oakley’s dad) is looking into doing the vaccine prior to chemo, so keep an eye out for updates in his posts.  Please share more videos of Arktik soon!  I still think of him as being Griffin’s tripawd twin! ~ Stacy

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