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Sterile Hemorrhagic Cystitis
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Virginia







Member Since:
22 February 2013
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22 January 2019 - 1:59 pm
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Been following  your posts and marvel at the wealth of information  we have all gained about everything pee!!  😎😎   Nice job Paula, Jackie and Kim!😚

Really glad Emerson is getting  over the hurdles, slow.y but surely!

Hugs 

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

New Hampshire
Member Since:
24 June 2015
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1 February 2019 - 9:36 am
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really quick update... (more to come).

His lymph nodes are swollen again. I am 1000% devastated and haven't slept since i realized. Oncologist appointment at 2pm ... and it's an 1hr 40 min drive to get us there.  

Virginia







Member Since:
22 February 2013
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1 February 2019 - 10:43 am
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Okay, you're getting him checked out right away, so that's  good.  Try not to jump ahead.  Easker said than done, that's  for sure.  Vut rhis xould ve so many treatable  things.

With all his pee issues, it's  not surprising that maybe the swelling  is indictative of an infection related to that.

Update when you can.  We're  all sending  healing energy.

Extra hugs 

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

Member Since:
1 October 2017
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19
1 February 2019 - 3:59 pm
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Oh no, I am so sorry. I hope your visit goes well.. please keep us updated as you are able to. Sending you positive energy, and prayers.

Big hugs,

Jackie and Huck heartheart

Hugs,

Jackie, Bo, Andy, Oscar, Phoebe, and the coolest feral tripawd kitty Huckleberry

Huckleberry's Blog

New Hampshire
Member Since:
24 June 2015
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20
1 February 2019 - 8:59 pm
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worst news confirmed ... he's relapsed. 

I'm crushed. 

The vet said that only 1 lymph node is moderately swollen and the others are starting to feel firm. He said that I've  caught the relapse early ... probably about a month earlier that then average person would have detected it. We'll do a few doses of rescue chemo. to buy us some time.

Besides that, the cystitis has improved significantly (just decreased his dose of dox. tonight). He's in really good spirits and still has no clue that he's sick.... so all is not lost. Although my heart is broken.

Member Since:
1 October 2017
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1 February 2019 - 9:08 pm
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Be strong for your baby. I'm so sorry you're going through this. 

He doesn't know anything is wrong, that's a plus. 

Fingers, toes, paws, and tails crossed for you ❤️

Try to breathe and live for the moment for him.

Biggest hugs,

Jackie and Huck ❤️

Hugs,

Jackie, Bo, Andy, Oscar, Phoebe, and the coolest feral tripawd kitty Huckleberry

Huckleberry's Blog

Virginia







Member Since:
22 February 2013
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2 February 2019 - 12:18 pm
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Geez, wasn't  expecting this, really wasn't.   I know it's  a kick in the gut.  I also know you will do your research and you will make decisions that are in Emerson's best interest..just like you did  with Jerseyboy.❤

It IS good that you spotted this far earlier than most would.  That will definitely  work in his favor!  

And as you already noted:

 "Besides that, the cystitis has improved significantly (just decreased his dose of dox. tonight). He’s in really good spirits and still has no clue that he’s sick…. so all is not lost."  

Emerson is feeling good, and that's  a great indicator of Emerson veing Emerson.....not a staristic....not what "clinical tests" show.

Hang in there and keep us updated, okay?

Extra higs

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

On The Road


Member Since:
24 September 2009
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2 February 2019 - 1:04 pm
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Ugh darn cancer. I'm really sorry! But I'm so glad we were able to talk last night in the chat room . How's he doing today?

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

New Hampshire
Member Since:
24 June 2015
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3 February 2019 - 11:34 am
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We've had a little bit of time to 'sit' in the news. (He's perched above my shoulder on the back of the couch as I type this message) (Can't remember how to do images, but here's a link for now: https://www.ins.....bepB7DbOp/)

The rescue protocol started with a dose of Elspar (L- Asparaginase) and a high dose of Prednisone (Plus dox for his cystitis). By the same evening, the largest node had reduced in size by 50% and all of the others were virtually undetectable (by me). By the next morning, I couldn't feel any of his nodes. So the good news is that he has responded to the rescue protocol and we will probably see a second remission as we start the next step.

Beyond that, he seems fine. Probably not feeling 100%. But, he's still acting 100% himself (Barking out the window, barking at the neighbor dogs, growling at the mailman, stealing his brother's food, wrestling and kissing his little brother...)

I have a lot of thoughts .... but it's all an exercise in futility to recite them all. Except for this one... So, the Dr. told me that the rescue protocol will likely give him another 4 months and that we should be able to manage him for another 1-2 months beyond that. All of this stinks, but I've gotten soo much better with coping with difficulties over that past few years (I've endured a series of devastating loss and setbacks over the past few years. So I'll get through this). At the same time, I have plans to travel to Africa for 2 weeks and that trip coincides with this same timing. Ugh ... this is *just* like what happened with Jersey... I know that my mom is perfectly capable of caring for him and making all necessary decisions. but this is the part that has me in pieces.

Ughhh... 

Virginia







Member Since:
22 February 2013
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25
3 February 2019 - 12:45 pm
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What is wrong with you!!???  You've  been a member long enough to know that, when we have a picture as cute as this, we must have a CUTENESS ALERT!!!!  ADORABLE ALERT!!!!  PRECIOIS ALERT!!!  Yes, we need three "alerts" with this cutie pie!!

As you know, no dog is a statistic  around here.  Some far exceed."statistics ", some don't .  I really, really believe that, with Emerson's  miraculous response to his therapy so quickly,  and with you catching the swelling so quickly, he REALLY  has a chance to blow statistics  out of the water!  

Africa....oh yes... you must go!!!  Always, always, always wanted to go, and now aI know it will never happen, but you must NOT miss this opportunity!! You KNOW Emerson  would want you to go!  You know that!!   And yes, Emerson  would have exquisite  care with your Mom.  She would do everything  for him just as you would.  Whatever will happen, will happen whether you are there or  not.

  I understand  your feelings thpugh.  But for now, put those worries aside, okay?  Jist continue  to stay in the moment  and trust that all will unfold as it should.  Right now you are having  some miraculous  victories to celebrate!!

Ypu kmow we must  have mpre pictures, right?  He makes us all smile😁

Higs

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

PS  I'm sorry you've had so many hurdles in your life recently..  No, the good times don't  last forever, but neither do the bad times!  Hopefully  you are on the "good times" part of your journey for awhile now❤❤

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

On The Road


Member Since:
24 September 2009
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26
3 February 2019 - 3:21 pm
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I'm soooo glad the treatment is working! clap

Regarding the prognosis. . . try not to get ahead of yourself. There's no point. While it's good to have a backup plan since you have a trip of a lifetime planned at the four month mark, also try to keep in mind that not even the smartest vet can predict how long your boy has. He could go on and on for a long time. And the more you worry and focus on the what ifs, the less you are being present with him and enjoying every second together. So don't let cancer do that to you guys. Love him up, know the reality of his condition, but keep hope strong in your heart because you just never know.

Oh and regarding adding images to the Forums. . . if you started a blog for Jersey (I think you did right?) you can post your images there and copy/paste the image URl in your forum post. Or, just share your IG photos, which are adorable!

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

Member Since:
1 October 2017
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27
3 February 2019 - 4:02 pm
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Omd he is just adorable!! I could just smooch him from here!

All i can do is echo what the most pawsome people have said.

He doesn't have a "time stamp" anywhere on him, which is a double edged sword.

You really gotta take this one step, day at a time. 

We all know this can go either way of the spectrum, so just love him and this awesome success for the miracle that it is right now. 

So hard not to worry, but you are your pup's biggest advocate and you are giving him first class care 🐾❤️🐾

One step at a time, and I'm SO glad he's responding!!! That's a HUGE SUCCESS!

You've been around here longer than I, I'm just gonna be one of your cheerleaders 🐾❤️🐾❤️🐾

Big hugs,

Jackie and Huck ❤️

Hugs,

Jackie, Bo, Andy, Oscar, Phoebe, and the coolest feral tripawd kitty Huckleberry

Huckleberry's Blog

New Hampshire
Member Since:
24 June 2015
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28
4 February 2019 - 9:08 pm
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Thanks again for your support... I truly appreciate it.  I know that this site is dedicated to tripawds and I am grateful for the support that I've received here although this topic is entirely off topic. (bone cancer is a cruel, cruel, cruel cancer...!!!!)

really ... from the bottom of my heart. I am grateful. (This is a topic that I can't really express openly with many of my friends and family ... to them my doggies are just *dogs*. But, my dogs mean more to me than most people.. #truth).

Emerson continues to do well, all lymph nodes are back to normal size and the prednisone is making him absolutely nuts. I've resigned to giving him prednisone at night because cuddling supersedes everything for him and he will fall asleep in bed with me.... and by morning, the side effects are dampened.

He's *literally* licking the floors, couch, carpet, walls .... sooo hungry!!. In fact, he ate SALAD with me last night (lettuce, bell peppers, tomatoes and a touch of Italian dressing). So, I'm faced with the problem of not over spoiling him.... (I think i'll invest in some canned pumpkin. Fiber-rich, dense and filling). I know that both Doxycycline and I prednisone aren't kind on the belly, I want to make sure that he's eating with his 3 rounds of daily medication... but not gaining weight (he's already chunky). Any ideas for low calorie and filling would be welcomed ... he's soo hungry that he'll eat anything.

We start the CCNU rescue protocol in 10-days. https://www.ncb.....d/17338160

Today, we visited with 'our' other grandma... where Emerson show of his catching and fetch skills. So, he's still feeling ok... and still very much interested in playing. The cystitis.... well, it continues to improve. I think he's @90% normal right now.  (Still asking to go outside frequently) He's not straining much and he doesn't seem to have urgency with urination (ie. he doesn't feel like he has to go after he's emptied his bladder). And, he has not been a diaper since our 1hr 40 min emergency visit to the Oncologist on Friday. (Note: he didn't use the diaper, I put it on him because I didn't want him to pee in my car... again.)

I am still reeling and emotional and scared and I have stayed at my mom's house since receiving the new. But, I think it's time for me to go home and try to get back to normal. (I have a REALLY great job that allows a krazy amount of flexibility where I make my own schedule and can spend an entire week working from home if I need to. I have taken full advantage of that, this week and won't be leaving home, for work, until Thursday.) So... we'll pack up and head 2.5 hrs north in the morning ... i'm already feeling lonely.

thanks again everyone .... honestly. your support means the world to me.  Here are some videos from better times:

Emerson and Jersey: 

Emerson, Jersey and Daphne (Bunny): 

On The Road


Member Since:
24 September 2009
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4 February 2019 - 10:05 pm
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Awwwwww I LOVE the videos! And with Jersey?! LOVE seeing that sweet angel. You have some amazing furkids, what a joy to watching them all having a ball.

You can always come here, once a Tripawd family member, always. And Emerson's health situation is not at all off topic. I guarantee you that unfortunately at some point, there will be another member dealing with a similar condition who is looking for insight from another person who's dealt with it. So as helpful as it is for you to be here, you are also helping someone else somewhere down the road. AND we love having you here and watching your sweet furkids, so it's a win win.

90% normal is sooo much better than a week ago! YAY!

As for the prednisone side effects....ugh, that's a tough one. I remember it did that to Jerry too. Definitely mention it to your vet as the dosage can probably be dialed down eventually. For now, anything like green beans, steamed pumpkin or squash pulp and fiber rich veggies might do the trick and satiate him better. Is he a fan of veggies? Check out our Tripawds Nutrition blog for some DIY treat recipe ideas, there's a ton there.

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

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1 October 2017
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5 February 2019 - 4:07 am
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I just watched in amazement, lol. Rottie, Yorkie, and Bunny all living harmoniously... amazing! I am so sorry you are dealing with this, but like Rene said, you are family. And I know I don't know you, but I have met so many amazing people here and this is what it is all about, right? 

When I was a tech and we had people going through similar appetite wise, veggies and good fruits were our go to foods. Frozen veggies even.. carrots, beans seemed to be a hit along with sliced apples, sweet potatoes, and I am sure there must be something of the like that Emerson enjoys. Whole Greek plain yogurt ( I get organic) is also good for the gut, and Mitchell enjoys some cottage cheese as well. Pumpkin is a good idea, but be careful, I used to give that a lot to a kitty that I had with mega colon and it can make them GO! 

Boiled chicken, or rotisserie chicken is good too. You can get a big rotisserie chicken and divvy it out into little snack bags, freeze it, and warm each serving up as you need it (about 30 seconds in the microwave).  Plus, some people take their dog's kibble and only feed a portion of it in a bowl. Put the rest in a zip loc and feed them as "treats" throughout the day. I hope some of this helps!

I am really glad Emerson is feeling better, I know after what you have been through this is probably enough to give you a meltdown. 

Your pictures and videos are totally precious!

Hugs,

Jackie and Huck heartheart

Hugs,

Jackie, Bo, Andy, Oscar, Phoebe, and the coolest feral tripawd kitty Huckleberry

Huckleberry's Blog

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