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Two weeks post-op, hopefully getting Susie's stitches removed tomorrow--carboplatin?
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Member Since:
11 January 2016
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20 January 2016 - 10:08 pm
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We decided to drive to Manhattan, KS in the midst of a heavy snowstorm tonight, as the weather predictions are even worse for tomorrow. Susie did not seem fazed by the treacherous driving conditions for the past few hours (yes, the drive took a LOT longer than usual, in traffic that was sometimes stop-and-go on the icy roads), but curled up on her blankies in her bed in the back seat of the car. Just checked into the Holiday Inn Express, which seems to have become our home away from home these days as we navigate K-State's Oncology and Surgery departments. (Everyone knows us at the hotel by now.)

Because Susie's lymph node biopsy showed possible cancer metastasis, we are hoping to meet with an Oncology veterinarian tomorrow, too, to discuss when or if to start chemo.

I got this email message from Susie's oncologist today: "As discussed during Susie's initial appointment, information regarding the clinical benefit of chemotherapy for Susie's specific tumor type is lacking.  However, it would be reasonable to consider a broad spectrum chemotherapeutic agent post-operatively for Susie; perhaps a course of carboplatin."

Anyone have any experience with carboplatin? What are the side effects?

Schofield, WI
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20 January 2016 - 11:12 pm
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That seems to be the one they use most often for osteosarcoma.  Usually between 4 - 6 treatments.  A lot of dogs seem to tolerate it quite well.  They will do blood tests between treatments to check their cell counts and give you anti nausea medication.. The only side effect we noticed was our boy was very tired the two days following his treatments.  Keeping my fingers crossed your sweet Suzie will sail through it with no side effects. Hugs

Linda & Spirit Mighty Max

Schofield, WI
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20 January 2016 - 11:16 pm
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I'm sorry I was going to wish you safe travels home too.  I hate driving in snow and know how treacherous it can be.  Be safe!

Linda

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20 January 2016 - 11:22 pm
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Awww....thanks so much, Linda! And they are predicting 7 more inches here overnight...so we may be here an extra night!

(((hugs))))xxxx

On The Road


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21 January 2016 - 9:22 am
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Oh wow glad you made it there safely. Stay safe and warm. Brrrr!

LOTS of info about carboplatin here, thousands of posts in the Forums and several in our news blog, usually about osteosarcoma. Carbo is a very common treatment and usually well tolerated by most dogs.

Here is a list of questions to go over with the onco:

http://tripawds.....ncologist/

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

Green Bay, WI


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21 January 2016 - 9:24 am
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Hi, Nitro had 6 doses of Carbo and tolerated it quite well. About half-way through we increased the time between doses from 3 to 4 weeks to give his white blood cell count to rebound better. If your dog experiences nausea, the vet can give meds for that (usually Cerenia). She will feel so much better when those stitches come out! Sorry you have the added stress of crappy winter weather - we live in Wisconsin, so I can relate. Paws crosses the visit goes well.

Paula and Nitro (and Kodi the Westie)

Nitro 11 1/2  yr old Doberman; right front amp June 2014. Had 6 doses carboplatin, followed by metronomic therapy. Rocked it on 3 legs for over 3 years! My Warrior beat cancer, but couldn't beat old age. He crossed the Bridge peacefully on July 25, 2017, with dignity and on his terms.  Follow his blog entitled "Doberman's journey"

http://nitro.tripawds.com

"Be good, mama loves you".....run free my beautiful Warrior

Virginia







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21 January 2016 - 11:48 am
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For the love of dog, right? Glad you got ahead start, somewhat, on that snow! I know Susie thinks she's on a little mini vacation! Besides, in a dog's world, HOME IS WHERE MY HUMAN IS!winker

And even if the Onco doesn't think chemo ks the way to go because of the lymph node, there are other treatments she'll go over.

Update when you can! Stay warm a d safe and Susie, enjoy your vacation!!

Hugs!

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

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21 January 2016 - 6:55 pm
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Thanks so much, Rene (I finally figured out that YOUR name is NOT Jerry) big-grin, Paula, and Sally! They did remove Susie's stitches today!!! That was a huge relief, and well worth the drive last night in harrowing conditions (and two nights' unplanned stay at the Holiday Inn Express here). And (drum roll!) the surgeon we saw (not the same one who oversaw the surgery) did agree to prescribe Gabapentin for Susie's Phantom Limb Pain. The only problem is I'm a bit worried that Susie has been almost in a coma since I gave her the first capsule. Part of that extreme sleepiness may be from going through her ordeal at K-State today. (I'm sure she was worried that I was going to leave her there again for four nights!) Does the sedation from the Gabapentin ease up after the first day or two?

The surgeon still wants her off the Meloxidyl as soon as possible, because of the possibility of bad side effects. But the oncologist said it would be okay if she stayed on it for a brief time, as long as she had blood tests periodically to make sure her liver and kidneys weren't being affected.

I asked about Rehab, and they all were against it, thinking it was a waste of time and money. They all thought Susie would learn to balance on her own. (That doesn't mean I won't pursue it on my own, as soon as Susie is more recovered.)

Then the oncologist (not the one I'd seen before) did a consultation with us about chemo. She said she had no idea if it would work or not, as there hadn't ever been any studies done on Susie's very rare form of cancer, since there have been so few dogs diagnosed with it. There are no protocols whatsoever. She said, because of the cancerous cells found in the lymph node they removed, she would consider the chemo to keep the cancer from spreading, not from reappearing--and that sooner would be better than later. However, she said it would be a good idea to let Susie heal from the surgery first. She also said there are no right or wrong answers. I asked what the point would be of doing the chest X-rays, abdominal ultrasounds and lymph node aspirations every three months, and she said, once the cancer metastasized to the lungs, the point of doing chemo would be just to buy time.

The oncologist was very willing to give of her time, even though we didn't have an appointment with her. I have found that to be true with all the doctors at K-State. They seem willing to spend as much time as you need when you're asking questions, even if they've got a million more things to do. (And they always do have a million things to do, it seems.)

I'll give the Gabapentin a couple more days to see if the side effect of sedation lessens. Has anyone else had a problem with their dog being too sleepy when on it? She also seems disoriented when she wakes up, and has trouble walking. (But she's only had one dose, so far!)

We are definitely staying an extra night in Manhattan to give the snow plows time to dig out the Interstate!





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21 January 2016 - 7:17 pm
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We did not do the Gabapentin as Sassy never needed it.  So I can't discuss the side affects maybe post that question in the Ask a Vet and Dr Pam can answer for you.  I am glad they gave her it to try. 

The NSAID can mess with liver, kidneys etc.  That is why the do blood tests even if a dog is on Rimadyl for long periods of time.  Those are good things to keep checks on.  I know we checked Sassy's once while she was in recovery just because she had been on it awhile. 

I am sorry about the rarity of her cancer so that there are not any protocols on it.  We did Carboplatin 4 doses before Sassy's Osteoscaroma spread and we stopped and did the metronomics .  The symptoms Sassy had was nausea starting at the 2nd dose so we gave Cerenia before her treatment and for 5 days after.  She was a little picky eating those few days but more so on the Metronomic therapy.

Glad you are staying safe

Michelle & Angel Sassy

sassymichelle-sm.jpg

Sassy is a proud member of the Winter Warriors. Live long, & strong Winter Warriors.
sassysugarbear.tripawds.com
07/26/2006 - Sassy earned her wings 08/20/2013

05/04/2006 -  Bosch, Sassy's pal, earned his wings 03/29/19  fought cancer for 4 months.

"You aren't doing it TO her, you are doing it FOR her. Give her a chance at life."

On The Road


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21 January 2016 - 8:43 pm
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I find it an honor to be called Jerry, but yes, I'm his mom even though he's a spirit doggie now.

Glad that you've reached this big step in the journey, what a great day to have that behind you!

Gaba can definitely have sedation effects, it may need to be adjusted. I know, just what you don't want to hear. But some dogs are prone to extreme sleepiness with it. Sorry, but you should let the vet who prescribed it know what's going on if it keeps up.

As for the rehab...did they really say that?! I'm surprised. I hate to say it, but was it because they thought she might not live long enough to reap the benefits of rehab? I say that because when Jerry was diagnosed, his vet thought he wouldn't live long enough to experience  harmful side effects from things like vaccinations or flea meds. Haha proved them wrong, he lived two years. So I just wonder what made them say that?

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

Virginia







Member Since:
22 February 2013
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21 January 2016 - 9:04 pm
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YAY!! STITCHES ARE OUT!!

AND YAY! You got the Gabapentin! Good job!

My Happy Hannah had Gabapentin and it did NOT make her sleepy or druggy, that I noticed anyway. That said, and darn if I can remember who, someone on here the last several weeks DID have that problem! They either reduced the doseage, or discontinued, I don't remember which.

Talk with your vet about reducing the dose and/or the time in between each dose. I think part of her tiredness was also due, in part, to having an exhausting day at the vet.

I'm soooo glad you had a good consult with her Onco. You did a good job of preparing your questions and she answered them, as best she could anyway! Leave it to Susie to have such a rare case!

Try and use this time...this "vacation time"..to catch up on some much needed sleep while Susie is doing the same. Stitches are out today and you were an extraordinary advocate for Susie today. So, for now, just put everything on tne back burner and just enjoy being with Susi and getting her through the recovery phase.

Please be safe on your travels! We care so much about you and Susie!

Hugs and love!

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

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11 January 2016
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22 January 2016 - 9:29 pm
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Michelle,

Thanks! The oncologist we saw yesterday did mention Carboplatin as the preferred chemo drug to use first, and then she mentioned metronomics . I asked if Susie would lose her hair, and she said it was indeed possible, but it would grow back. (She said even her eyelashes would grow back.)

They did blood tests on Susie before the biopsy, and then checked her kidney and liver functions again right before her amputation. So far, so good.

It was tough saying good-bye to the veterinary student at K-State who took care of Susie throughout her four-day hospitalization earlier this month, and then was there for the removal of Susie's stitches. I gave her three cards that I'd made with Susie's photos on them, plus a book on places to travel with your dog. (She'd told me that she was going to be traveling in California with her two dogs after she graduated this spring.) She was so sweet to Susie and developed a bond with her.

Nancy (& Susie)

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11 January 2016
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22 January 2016 - 9:40 pm
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Rene,

I really think they don't consider Rehab necessary for any new Tripawd. One of the surgeons was even kind of rolling her eyes when I asked the question about it, and they all were kind of looking at each other and also looking uncomfortable.  I said, "There are rehab places for dogs that employ physical therapists," and she made some comment (can't remember exactly what she said) that made me think that she thought those places just existed to make money for the people who worked at them.There were actually four vets (a surgeon, a surgery resident, an oncologist, and a veterinary student) in the room with us, and they all agreed that dogs do much better rehabilitating themselves after an amputation surgery than they'd do if they went to Rehab.I was kind of surprised, but I'm still thinking I may look into Rehab for Susie once she's recovered a little more.Nancy (& Susie)

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22 January 2016 - 9:52 pm
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Awwww...Sally, your posts always make me feel so happy (and relieved...and reassured--and everything good!) You're the BEST! Thanks so much for being YOU!

I can't tell you how much less stressed-out I feel, now that the stitches have been removed. Now I don't have to worry that Susie will pull her stitches out the second my back is turned. (You may remember that none of the Cones of Shame I bought for her worked out.) They do want her to continue wearing her Thundershirt for another week, as it has kept her from licking the incision, and they said it (the incision) will be getting really itchy at this point.

I'm starting her out now with just one dose of the Gabapentin at night, to see how she does. Night time is when she is most restless, and when she seems to experience the Phantom Limb Pain the most, anyway.

Thanks for saying I asked all the right questions. I had a "cheat sheet"--a piece of paper that I kept writing questions down on the past couple of weeks! (I didn't get Rene's link in time before the appointment.) There were a couple of things, of course, that occurred to me on the ride home in the car, but those are things I can ask Susie's new local vet once she has her appointment. (I'll be starting a new "Cheat Sheet" tomorrow! haha)

Thank you so much again!

Love,

Nancy (& Susie)

On The Road


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23 January 2016 - 11:44 am
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Wow I'm surprised at their attitude, that's a first! I'm not a vetbut you are wise to pursue it. Good job!

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

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