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New Member: Tahoe - Just diagnosed with PAHS - Next Steps...
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Kelowna, British Columbia Canada
Member Since:
28 February 2013
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28 February 2013 - 9:32 pm
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Hello Everyone

Thank you for putting together such an amazing support site. I have read through many posts, with not a dry eye in sight

 

Like most people on here, we have faced some challenging decisions for the best care for our best buddies. I am no different ...my best friend and companion is named Tahoe. He is a male 9 yo Golden Retriever, with suspected Periarticular Hystiocytic Sarcoma (PAHS) of the right front elbow. We are waiting final confirmation from the immunohistochemistry stains confirming 100% PAHS. The surgeon has advised that there is a 90% chance of met already even though the 3-view xrays of the lungs did not show. We have not done ultrasound or CT of abdomen or other organs.  We have been advised that the best option is likely amputation, with drug treatment post.

 

I have been living and breathing with this for 2 weeks now, reading, reading and reading and talking to as many people to try and figure out what I should do...do the utltrasound or CT to determine if large met has occurred or just hope and pray and move to amputation and/or chemo.  I have been delving through Dr. Dressler's Cancer Survival Guide book for assistance amongst others.

 

I feel lost and need to make a decision. Any thought and suggestions as to how others made their decision to amputate or not?

 

Thank you very much!

Stirling and Tahoe

"Tahoe" - Our Amazing Superman and Best Friend.

Dec. 01-03 to Aug. 19-14

Diagnosed with Periarticular Hystiocystic Sarcoma Feb 14-13; Amputation March 18-13, and diagnosed with STS April-14. Tahoe touched so many people while visiting us, leaving a massive void in our lives. Always Missed, Never Forgotten!!





Member Since:
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1 March 2013 - 8:22 am
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I am sorry to hear you are dealing with this.  Our situation was a little different as we are dealing with Osteoscaroma.  But, we did 2 different biopsies that did not show conclusive that it was Osteo.  I basically made the decision because we knew something was going on & Sassy was having pain.  So I chose to amputate which got rid of her pain.

 

Others here may have dealt with the same kind of cancer as you and can give you their opinions.  I know I don't regret doing Sassy's amputation.  It took her pain away.   She is doing chemo and has done 4 and the last one is on march 6th.  lungs have been clear so far.  We are doing x-rays on this last chemo. 

 

 

sassymichelle-sm.jpg

Sassy is a proud member of the Winter Warriors. Live long, & strong Winter Warriors.
sassysugarbear.tripawds.com
07/26/2006 - Sassy earned her wings 08/20/2013

05/04/2006 -  Bosch, Sassy's pal, earned his wings 03/29/19  fought cancer for 4 months.

"You aren't doing it TO her, you are doing it FOR her. Give her a chance at life."

Kelowna, British Columbia Canada
Member Since:
28 February 2013
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1 March 2013 - 9:40 am
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Thanks Michelle for your thoughts. I hope the chemo and prognosis are going well for Sassy and you!

I guess everyone has their own reasons for choosing to amputate or not. With PAHS, there apparently is not as much noticeable pain (so I have been told) but Tahoe is in pain. I know PAHS is rare but thought there may be others on here with a similar diagnosis. Regardless, the same decisions and process need to occur.

 

After my meeting with the surgeon on Monday, I will be making up my mind but am leaning to amputation. After that, the decision will as to whether to proceed with chemo.  Lots of sleepless nights ...

Talk soon, Stirling

"Tahoe" - Our Amazing Superman and Best Friend.

Dec. 01-03 to Aug. 19-14

Diagnosed with Periarticular Hystiocystic Sarcoma Feb 14-13; Amputation March 18-13, and diagnosed with STS April-14. Tahoe touched so many people while visiting us, leaving a massive void in our lives. Always Missed, Never Forgotten!!

New York, NY
Member Since:
3 December 2012
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1 March 2013 - 9:55 am
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Hi Stirling,

 

Welcome - you've found the right place.

 

I totally hear what you are saying about "living and breathing this for 2 weeks".  I was the exact same way after my kitties first diagnosis (it's a very long story, I will not bore you with).  It's a very personal decision to amputate AND to do chemo, but you've found a place where MANY people have done both, or neither or just one of the two.  We're all here to answer questions.

I can tell you from my experience, and take it for what its worth, I have a ten pound kitty, not a big dog!, I would NOT hesititate to amputate again.  And, I will tell you after being on this website for three months and seeing how wonderfully these dogs do on three legs, if I had a dog in the same situation, I would not hesitate either.

My Jill is halfway through chemo now and doing great.

 

Anyway, not sure I was of much help, but just wanted to say welcome, please feel free to come to the chat room if you want to talk things out, theres usually someone in there :)

 

Erica & Kitty Tripawd Jill

Jill is a 9-year-old tuxedo kitty. She was diagnosed with Osteosarcoma in June 2012 on her toe in her right hind leg. Her leg was amputated on 12/12/12 and she completed four rounds of chemo (2 of Carbo, 2 of Doxy) in April 2013. "Like" Jill's facebook page: https://www.fac.....tty?ref=hl Proud member of the WINTER WARRIORS!!!! Her blog can be read at http://jillsjou.....ipawds.com. xoxo

Kelowna, British Columbia Canada
Member Since:
28 February 2013
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1 March 2013 - 10:06 am
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Thank you Erica. 

I appreciate your support and experiences to date! I truly am inspired by your words and the many others on here as to how people have banded together here in support of their buddies. I feel like my days and nights are all-consuming thinking and researching, trying to make sure I have thought through everything and making the best decision for Tahoe.  

 

I wish you and Jill great success with the end of chemo and I look forward to connecting with you on here.

 

Stirling

"Tahoe" - Our Amazing Superman and Best Friend.

Dec. 01-03 to Aug. 19-14

Diagnosed with Periarticular Hystiocystic Sarcoma Feb 14-13; Amputation March 18-13, and diagnosed with STS April-14. Tahoe touched so many people while visiting us, leaving a massive void in our lives. Always Missed, Never Forgotten!!

Fort Wayne, IN
Member Since:
25 January 2013
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1 March 2013 - 10:50 am
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mytahoe said
  I feel like my days and nights are all-consuming thinking and researching, trying to make sure I have thought through everything and making the best decision for Tahoe.    

Oh boy, can I ever relate to that! I couldn't understand why the rest of the world was moving forward when my world stopped.

I'm sorry you have to be here but I'm so glad you found us.

Erica is right, the decisions are very personal and no one here will judge your decision either way.  

As for our Liberty (Libby) the simple answer is....she just gave us no indication she was ready to give up.  The day after we brought her home she stopped needing our sling assistance.  She now runs (we are 4 weeks post amp), plays and does just about everything she did prior to the amp but now she's doing it all pain free!

We chose not to do IV chemotherapy and have chosen oral chemo given at home.  You can read lots and lots of info on here regarding both.  Take a deep breath and know we are all here for you. :)

Liberty (Libby) was diagnosed with OSA on 1-22-13.  Right front amputation on 1-31-13. No IV Chemo. Metronomic Therapy started 2-19-13 along with supplements and some home cooking. Lungs clear until 1-06-14.  She's still her happy, hoppy, bossy self.  Living the dog life to the fullest and a proud Winter Warrior. :) RIP my Libby 4-21-03 to 3-19-14

Kelowna, British Columbia Canada
Member Since:
28 February 2013
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1 March 2013 - 12:01 pm
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Thanks for your thoughts and feedback. I feel like I am the only one going through this until I found this site. Work, what is that these days ...

Glad to hear Libby's surgery went well and the chemo is going well. What were the pros and cons of oral versus IV chemo for deciding for you?

 

I am trying to complete my research and information gathering in preparation to making the decision and going forward. It is so easy to to get caught up in 'analysis paralysis' wanting to get it all right before making a decision but that is not realistic as Tahoe is getting sicker with this damn cancer still in him.

 

Have a great day! Stirling

 

"Tahoe" - Our Amazing Superman and Best Friend.

Dec. 01-03 to Aug. 19-14

Diagnosed with Periarticular Hystiocystic Sarcoma Feb 14-13; Amputation March 18-13, and diagnosed with STS April-14. Tahoe touched so many people while visiting us, leaving a massive void in our lives. Always Missed, Never Forgotten!!

Fort Wayne, IN
Member Since:
25 January 2013
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1 March 2013 - 3:31 pm
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"analysis paralysis" lol. Good one.

Libby doesn't like going to the vet so we didn't want her to spend one day shaking and unhappy.  We would also have to travel a couple of hours for the treatment.  Again, that would be time away from home and doing the things she loves on a daily basis.  I didn't get a cost quote, but I know it is expensive.  For some, that is also a serious factor to consider.  

Although most dogs/cats I've read about on here that get the IV chemo do very well, I just didn't want to spend time worrying about the possible side effects and watching for them.  

If her pathology report is correct, her osteo is not overly aggressive at this point so I'm hoping that works in her favor, bypassing the IV and going straight to metronomic protocol (oral chemo+NSAID).  We have also changed her diet and she is getting grain free dog food along with home cooked, cancer fighting foods.  This all gets topped with supplements (calcium, "magic mushrooms", probiotics, fish oil).  All this  makes me feel like we're doing something to help her.

When you have a plan in place you will feel much relief.  Keep reading and asking questions.  Make a list of them for your vet so you will be prepared on Monday.  Once again, no matter what you decide, we're here for you. :)

 

 

 

Liberty (Libby) was diagnosed with OSA on 1-22-13.  Right front amputation on 1-31-13. No IV Chemo. Metronomic Therapy started 2-19-13 along with supplements and some home cooking. Lungs clear until 1-06-14.  She's still her happy, hoppy, bossy self.  Living the dog life to the fullest and a proud Winter Warrior. :) RIP my Libby 4-21-03 to 3-19-14

Kelowna, British Columbia Canada
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28 February 2013
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1 March 2013 - 5:32 pm
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hello amy,

Very glad to hear Libby is doing well with the chemo.

I just received confirmation this afternoon from the surgeon that the biopsy results which were going through the immunohistochemistry came back positive, conforming PAHS in Tahoe.  I had already prepared myself for the final results but this was 100% confirmation that the cancer is quite an aggressive form.  The surgeon is recommending amputation, followed by the use of lumustine chemo.

 

I am trying to decide whether or not to determine if the cancer has metastasized yet into other organs, by way of ultrasound or CT scan.  And if the findings from that showed signs of metastasis, then do I put Tahoe through amputation and recovery???

 

Me thinks it will be a long weekend.

All the best, Stirling

"Tahoe" - Our Amazing Superman and Best Friend.

Dec. 01-03 to Aug. 19-14

Diagnosed with Periarticular Hystiocystic Sarcoma Feb 14-13; Amputation March 18-13, and diagnosed with STS April-14. Tahoe touched so many people while visiting us, leaving a massive void in our lives. Always Missed, Never Forgotten!!

Fort Wayne, IN
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25 January 2013
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1 March 2013 - 8:18 pm
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It's not as much of a shock is you've already suspected it. Although I know we all hold out hope that it's something else.  

I can only tell you what we did prior to Libby's amp.  Our vet took xrays of her hips to see if she could support 3 legs.  He also xrayed her lungs.  Her lungs were clear but that didn't mean it wasn't in there....only that it may be too small to see in an xray. In 90% of the cases of OSA the cancer has already metastisized in other areas. Her right hip is perfect her left hip has arthritis but she doesn't show it on the outside. We felt these were all positive signs and we decided to go ahead with the amp.  We never looked back and I have not regretted it in the least.  That's my story and I'm stickin' to it. :)

Liberty (Libby) was diagnosed with OSA on 1-22-13.  Right front amputation on 1-31-13. No IV Chemo. Metronomic Therapy started 2-19-13 along with supplements and some home cooking. Lungs clear until 1-06-14.  She's still her happy, hoppy, bossy self.  Living the dog life to the fullest and a proud Winter Warrior. :) RIP my Libby 4-21-03 to 3-19-14

On The Road


Member Since:
24 September 2009
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1 March 2013 - 8:35 pm
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mytahoe said

I am trying to decide whether or not to determine if the cancer has metastasized yet into other organs, by way of ultrasound or CT scan.  And if the findings from that showed signs of metastasis, then do I put Tahoe through amputation and recovery???

Stirling, you may want to read about Zeus, his story may help you decide:

X-rays vs. CT Scans for Canine Bone Cancer Staging

Senior Dog Zeus Living Large, Against All Odds

Always remember, prognoses are just numbers. They don't take into account your specific dog and oh, nine out of ten statistics are wrong anyways ;) . Hang in there.

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

Kelowna, British Columbia Canada
Member Since:
28 February 2013
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1 March 2013 - 9:04 pm
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Thank you Amy and Jerry.

Hearing your story about Libby and reading about the 'amazing Zeuss' has convinced me that I think I have enough information to make a decision. We did 3-view xrays of the lungs at the time of biopsy and they were clear (at that nodule size) but I also understand that based on the cancer type, there likley is underlying micro nodules. 

I think I just have to go-for-it and once the amp is done, focus my thoughts and energy on fighting the cancer and ensuring Tahoe receives the best quality of life possible while we have him.

 

As we and our animals get older, you start to realize just how valuable time is. This is certainly one such case.

 

Jerry - thank you for the amazing site and the continual support on the site! I feel blessed

Thank you, Stirling

"Tahoe" - Our Amazing Superman and Best Friend.

Dec. 01-03 to Aug. 19-14

Diagnosed with Periarticular Hystiocystic Sarcoma Feb 14-13; Amputation March 18-13, and diagnosed with STS April-14. Tahoe touched so many people while visiting us, leaving a massive void in our lives. Always Missed, Never Forgotten!!

concord,ca
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18 October 2012
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1 March 2013 - 9:33 pm
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I am so sorry that you are having to deal with all of this.  I know at times it can all be so overwhelming.  There is so much great information on this site.  We have all been there, and the support here is amazing.  Our dog was limping and an xray showed a tumor on her left rear leg. Like most other dogs, she did a pretty good job at hiding her pain, but I could tell the tumor was slowing her down.  They suspected Osteo but could not be 100 % sure.  Instead of doing a biopsy, we went straight to amputation.  The vet was pretty convinced it was Osteo so we trusted his judgement.  Cadence's lungs were clear at the time, so we went for it. They biopsied the leg after the amputation and it was Osteo.

 You will be amazed at how Tahoe will adjust to his new life on three legs.  Im sure you have read all the forums, so you can see that life does go on for our furry friends after the amp.  You just have to be patient and make sure Tahoe takes it easy for a while.  But after a few weeks of rest and lots of love, Tahoe will be just fine.

We opted to do the chemo and we did 4 rounds of Carbo.  Unfortunately, mets were found in Cadence's lungs after the last treatment.  Cadence lost her battle but there are plenty of dogs that thrive even when mets are later discovered.  If we were given the same set of circumstances, and had to do it all over again, we would not have changed a thing.  Cadence got almost 4 months after the amp.  Her days were filled with fun, laughs and we made a lot of memories in those months that we were blessed to have.

I know it is a tough decision to make.  But like I said, I would do it again in a heartbeat.  Cadence was no longer in pain after the surgery and she thrived and enjoyed her life, and we enjoyed it right along with her. 

“Dogs are our link to paradise. They don't know evil or jealousy or discontent. To sit with a dog on a hillside on a glorious afternoon is to be back in Eden, where doing nothing was not boring--it was peace.” ― Milan Kundera

lovejake
14
2 March 2013 - 11:14 am
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Welcome to the best site with the best people! Jake was a 8 year old Golden from TAHOE. My thoughts are with you in your journey.

Montana
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1 February 2013
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2 March 2013 - 8:46 pm
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So glad you found this site. As you will find, just the fact that everyone on here cares makes everything so much easier. We didn't give ourselves time to think about Shooter's amputation as it was either that or have him for a much shorter time. As has been said, your final decision is your's alone and we are just here to put that hand on your shoulder to help you through it no matter what. I will send happy thoughts Tahoe's way. He knows you love him!

Spirit Shooter was a Miniature Australian Shepherd who was diagnosed with a MCT and had a LF amp 1/28/13 at 13-1/2 years old. 

Shooter crossed the Bridge on 8/28/13, his 7 month ampuversary and two weeks from his 14th birthday.

http://shooter......ipawds.com

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