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Any experience with Macular Degeneration?
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Forum Posts: 135
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16 October 2016
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5 November 2017 - 4:49 pm
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Hi everyone

A few weeks ago I was diagnosed with Myopic Macular Degeneration – I was having vision problems in one of my eyes.  I am pretty nearsighted and this is what is causing the problem (spot in vision, blurry in that eye).  At any rate, I’ve only been able to find general info online so if anyone has any experience with this, or knows anyone who does, I would love to hear about it.  It is frustrating to know that it won’t really get better, just hopefully the doctor can manage the symptoms.  He did say that some people have an improvement in vision with the treatments (injections in the eye, I’ve had one so far with another due the end of this month) so I am keeping my fingers crossed for that!

I wish I were able to keep up more with what is going on in the forums, being on the computer isn’t always comfortable.  Certain lighting situations are better than others.  I admit I’m struggling with this a little, as I try to balance work (I’m a bookkeeper, so on the computer a lot) and other stuff.

Tai is doing great by the way 🙂  I think I have spoiled her taking her to work all the time, she is ready to go everywhere now.  She really enjoys riding in the car. 

Thanks for reading.

Virginia




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5 November 2017 - 5:30 pm
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Tracey,so sorry you are having to deal with this.  I’m sure you WILL find some valuable information here from yiur “family”.  Goodness knows this a great source of information for almost ANYTHING anf a great source of strength and support!

It’s rotten that you are haviw to deal with this, but sounds like your Doctor has you on the right path.  And you have Tai to show you how to Be More Dog and defy the odds!   And you have us!heart

I’ll be following this thread to see what information is sent your way. 

Hang in there!   And give that sweet Tai a big smooch for us!  Spoiling cute little tripawds like Tai is so much fun!

Love and hugsheart

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

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6 November 2017 - 11:18 am
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Hey Tracey,

As someone who is extremely nearsighted myself, I can only imagine how upsetting it was to get that news. It’s a condition that usually only affects older people, my 82-year old mom being one of them. When you’re working age it can throw your world into a tailspin. If you haven’t already, find a good support group to join. I wasn’t able to find any active Discussion Forums like ours but there are two active Facebook groups you may want to visit when you’re able:

https://www.fac…..targardts/

and

https://www.fac…..184716792/

I imagine that in-person might be more beneficial since it keeps you off the computer. I found a website with lots of links to groups but remind me where you live and I’ll try to find one in your area. If you want to visit the website it’s:

http://www.mdsu…..g/support/

In my experience it took my mom’s vision a lonnnnnng time to get to the point where she’s having difficulties. She’s had it for years but only this year did it affect her ability to read. She still can, but in much shorter timeframes.

As you come to terms with it, look at your biggest inspawration Tai. You have watched her overcome so much and thrive even in the face of adversity. There is no better role model to follow. Give her extra smooches from us and keep us posted on things OK? We are sending lots of love your way.

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Forum Posts: 135
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8 November 2017 - 4:54 pm
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Thank you both so much for the words of encouragement.  For sure that Tai is a source of inspiration.  I am 51 so I try to not to worry too far ahead, though it is a little freaky to have some vision impairment in one eye.

Jerry (I’m sorry, I don’t remember your two legged name) 🙁  thanks so much for posting the FB links.  I’m not on FB so never thought to look there – I guess I should get on FB now.

I’m in CT if you come across any support groups in your internet travels.  There is a group in the MD Support link in your post that I may e-mail.  I really appreciate your finding the links! 

You all are the best heart

The Rainbow Bridge



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8 November 2017 - 8:55 pm
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Oh duh that’s right now I remember you live in CT. I hope the group proves helpful. As for the Facebooger, I’m not there much myself (Admin handles our page), but I do see the benefits of easily connecting people in these situations. I hope those groups are useful to you as well.

I can’t wait for the day that science comes up with a cure for vision conditions like this. I’ll be the first to get in line. Keep us posted ok Tracey? We send all the power of the Tripawds Nation to you so that this condition doesn’t hold you back one tiny bit. Give that adorable Tai a smooch from us! 

xoxo

P.S. No worries, I’m Rene!

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