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Bone Hemangiosarcoma
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27 June 2018
8:31 am
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Our almost 10 year old soft coated wheaten terrier was recently diagnosed with probable bone cancer and to alleviate the pain his left leg was amputated to the shoulder on May 31st. The histopathology report identified primary bone hemangiosarcoma.  We are researching best treatment options and would appreciate any insight you may have. 

It is our understanding that primary bone hemangiosarocoma is pretty rare.(the surgeon said he had never seen it and the oncologist said he had only seen it a long time ago.) Based on our research and our discussion with the oncologist, the appropriate treatment and success rates aren’t clear. The oncologist said if you ask 100 oncologists what chemo to use, 70-80% would say doxorubicin, although the research has been related to hemangiosarcoma in the spleen. However, he said it is possible that it is a type of bone cancer (I’m a little fuzzy on this, something with a T-cell) so it is possible that carboplatin might be appropriate. After much discussion and concern about the negative health effects of the doxorubicin on our dog,  we agreed to alternate treatments starting with carboplatin and next time doxorubicin.  

Apparently, there are no statistics and no set treatment protocol for primary bone hemangiosarcoma. As a side note, his lungs were clear as was his abdomen on recent scans. The only definitive location of the cancer was the bone, although we are aware that it is aggressive and metastasizes quickly. 

All the statistics for hemangiosarcoma in the bone are extrapolated from the spleen. Survival dates are from date of diagnosis, which obviously varies from those who discovered it early and those who didn't, so the dates aren't helpful except to indicate there isn't much time. Also, it appears that when chemo stops, the dogs die.  

So, we are at a loss as to what is best to do.  We don’t want to cause him more pain and get the feeling the doctors don’t really know what to do. We’d like him to live as long as possible as long as he isn’t suffering.  We would appreciate your thoughts on treatment and life expectancy.

27 June 2018
11:25 am
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Welcome and best wishes for your pup! Is his name Webster?

We're sorry to hear about his diagnosis, but you have come to the right place for help and support.

While you wait for comments from others, use the Advanced Search above to refine your forum search results with specific phrases, and you're sure to find lots of helpful feedback. You can also search all blogs here . Or, consider downloading the Tripawds e-books for fast answers to common concerns and feel free to call the toll-free Tripawds Helpline anytime!

Please keep us posted. Your future forum posts will not require moderation.

Meanwhile, start here for help finding all the helpful Tripawds resources and assistance programs.

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

30 June 2018
8:03 pm
Oakland, CA
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Hi there, I am so sorry for your diagnosis. Hemangio is nasty and bone hemangio is pretty rare so, as you have already found, there is not a ton of research. One thing I have seen used for hemangio is a product called I'mYunity and we have seen Tripawds members that have had success with it. It is made from turkey tail mushrooms and there is clinical evidence that it significantly increases survival time for dogs. I had a dog die from splenetic hemangio and if I ever get a hemangio diagnosis again I will definitely try the turkey tail. You can get other preparations of turkey tail but as far as I know I'mYunity is the only one that has been used in clinical trials. Talk to your vet about it, I would think it would not interfere with the chemo. 

As far as life expectancy, as you know it is typically poor with hemangio. But one thing we say around here is our dogs (and cats!) dont have an expiration date stamped on their butts! Statistics are based on averages and there are always outliers and exceptions to the rules. We have seen plenty of pets buck the odds and survive much longer than the statistics say they should. The key thing to focus on is quality of life and being in the present--try to Be More Dog

Hope this helps a bit. 

xoxo,

Martha, Codie Rae, and the Oaktown Pack

Woohoo! Tripawds Rule!

Regulator of the Oaktown Pack, Sheriff of the Oaktown Pawsse, Founding member and President of the Tripawd Girldogs With 2 Names ROCK Club, and ... Tripawd Girldog Extraordinaire!

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1 July 2018
8:17 am
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Welcome Webster, but what's a nice dog like you doing in a place like this.

Our younger Golden, Jet, will be seven in August, and was diagnosed with subcutaneous/intramuscular hemangio a month ago.  We looked into IMYunity but balked at the cost, and opted instead for mushroom powders from Canine Matrix, and K9 Immunity Plus wafers.  The thing with IMYunity is that there was only one clinical trial involving just 15 dogs (five dogs each on three sample dosages) that was funded by the manufacturer.  We've put all of our dogs on the mushroom "cocktail" and it seems to be having a positive effect on all.

Jet's surgery did not leave clean margins (the tumor was woven into the muscle on his chest wall), and our oncologist recommended revision surgery plus treatment with Doxorubicin.  He explained that there is a huge difference between primary visceral (spleen/heart/liver) hemangio and the subcutaneous form.  He also recommended the IMYunity, but is supportive of our cocktail. 

We've passed on revision surgery so far, but are proceeding with the Doxorubicin.  I know that this drug can interact with the heart unfavorably, but our vet states this is generally not a problem with dogs as they take lower doses for shorter periods than people.  We've also passed on the revision surgery for now, as well as any imaging.  Jet shows no signs of visceral hemangio on physical exam, and there is no evidence of a tumor growing at the site of his original tumor (the original tumor grew ridiculously fast).  If we did imaging, the results would not likely alter our treatment plan.

That's our experience to-date with hemangio.  Our oncologist is optimistic and as Jet shows zero signs of any illness today, so are we.

Wishing you success with your treatment protocol, and we be following your story.

1 July 2018
9:45 pm
Virginia
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Jet, your Dad passed on some great info!  Let him share in one of your treats tonight , okay?😁😁

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

3 July 2018
11:41 am
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Thanks all. We feel as though we are in a science experiment. It's never good when your doctor hasn't treated your issue before. We are still exploring options but have given Webster one does of carboplatin and he is scheduled for doxorubicin on the 13th. Still not sure about the mushrooms. Have a nice 4th. It's Webster's worst holiday of the year (major anxiety with thunder and fireworks. ) Poor thing, lose a leg, have cancer and then fireworks!  

3 July 2018
12:33 pm
Virginia
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Well Webster, you loke to do things in a very ...er....unique  way!!  Yep, you're  definitely  one of a kind alright!

Thanks for posting uour journey here.  It will be helpful  to anyone else who jas a dog who likes to do things in a unique  way.  Plus, with tons of experience here, someone  may pop in with some insight.

Yeah, I think most of us here are not fond of the 4th of July fireworks.  😥😝

Keep us in the loop.  We'll be cheering  for Webster.

Oh, one more thought. You may want to post under Ask A Vet.   Our Volunteer Bet came here years ago when her Mastiff Tazzie had on amputation.   She's  been kind enough  to offer advice to any of us with questions, especially  "unique " questions!

Hugs 

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

6 September 2018
6:42 pm
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Hi my dog was recently diagnosed with this and I would love to know how things are going with your pup? Our surgeon said the same thing and is not sure at all about what we should do. We plan to check in with an oncologist with in next 2 weeks 

6 September 2018
9:05 pm
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I am trying to respond to Howard. We knew something was wrong with Webster’s leg starting in mid April. We thought it was orthopedic related. When it turned out to be cancer, his left front leg was amputated to the shoulder (at the end of May.) Three weeks later he received carboplatin and had no side effects. Webster's white blood count did not rebound well but four weeks later he received a a reduced dose of doxorubicin. 25 mg No problem the first week just a little vomiting and diarrhea but 9 days in his white blood count crashed so severely we thought we would lose him. High fever. Happily he recovered but 5 weeks later it was apparent his blood count is just low and the doxorubicin is too strong for him. So now he is getting metronomic chemo(cyclophosphamide 10 mg) at home every other day. He is tolerating it with no issues. Other than the fact that he has three legs and has cancer he’s doing quite well and seems very happy. The big game changer for us was a friend suggested we use a wagon when we walk him so when he gets tired we put him in the wagon and can rest in the wagon and after a bit he gets out and walks for a while. He probably walked 3/4 of a mile today. So we take it day by day. Grateful he is happy that he can go to the park and on walks. Hoping for the best knowing hemangiosarcoma isn’t something that can be cured. Our dr said every dog is different so we are hoping he makes it for a while. The statistics are terrible. Good luck , please reach out if you want to talk. My other recommendation is don’t spend too much time on the hemagiosarcoma pages. It will only bring you down.

6 September 2018
9:32 pm
Virginia
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Glad to hear Webster is enjoying being Webster!!   And good for you for being such a good advocate  for Webster and getting him on a other protocol  when the Doxo was too rough.

Did you decide  to add the Muchroom therapy  to your arsenal? It does seem to hold some promise where hermangio  is involved. 

Hugs to Webster, and Howard too!

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

7 September 2018
9:44 am
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webster said
Other than the fact that he has three legs and has cancer he’s doing quite well and seems very happy.

WOW that is such great news! I would love to feature him for Tripawd Tuesday, do you have any photos you would like to share? Videos? This is very hopeful, thank you for the update!

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

7 September 2018
11:18 am
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Jerry, would love to share happy dog pictures and videos! As soon as I figure how to do it!  

7 September 2018
12:23 pm
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webster said
...would love to share happy dog pictures and videos! As soon as I figure how to do it!    

Here are detailed instructions for adding photos to forum posts . If you don't already share photos online somewhere, you can start a free Tripawds blog any time and upload them there. Need further help? Post in the Tech Support forum and we'll be happy to help!

Or, consider submitting a Tripawd Tuesday feature and check out the many other ways to share your story!

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

7 September 2018
3:26 pm
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I can provide an update on Jet . . . other than looking a little ghoulish, he's doing great.  He did 5 rounds of Doxorubicin.  His bloodwork remained good, but it did mess with his appetite for the first few days after a treatment, and he's now lost much of the fur around his eyes and snout.  Couple that with Doxy's tendency to darken skin and what do you get?  A Golden Ghoul.  We'll take that.

Jet's hemangio was subcutaneous/intramuscular, and his surgery did not leave clean margins, but here we are, a little over three months post surgery and there is no evidence of tumor growth at the original site or any visceral abnormality.  He gets his first chest X-ray on Monday.

Jet is also on therapeutic doses of Turkey Tail and MRM mushroom powders from Canine Matrix as well K9 Immunity Plus.

Finally, Webster is right about not researching hemangiosarcoma.  Very very depressing, but most information one finds is for the visceral forms (primarily spleen).  I read one story of a vet arriving to euthanize a dog that greeted her at the door, tail wagging, but based on its diagnosis, knowing she was doing the right thing.  Damn cancer!

7 September 2018
10:21 pm
Virginia
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Thanks fot rhe uodate on our handsome Golden JET!!!   Adding a little bit of "ghoul" just means he getting  ready for Halloween!

Made my day to hear how well Jet is doing!😁  Statistics  don't  mean squat ro Jet and he certainly  never spent one second  googling  anything  about this piece of  poopicon_png disease.

We're  all continuing  to cheer for this handsome  man!  Sending  lots  of pawsitive energy to Jet for continued good check ups.

Hugs 

Sally and Alumni Happy Hannah and Merry Myrtle and Frankie too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

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