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Soft Tissue Sarcoma Treatment Options?
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Westminster, MD
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31 August 2013
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16 March 2015 - 8:35 pm
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Hi Mia,
Good to hear once again that Jojo is doing well, I think about him often.....I know you must have been really glad to see both your handsome guys after being away.

I do wish I could help with your decision on further treatment, I am one of those that wished I did another couple rounds of chemo for Polly, or at least tried something holistic for her. We did no further treatments after her amputation, we did all her chemo before her actual amp surgery, because she had 2 separate lengthy surgeries a few months apart to remove the cancer from her front leg, but that eventually proved ineffective. Plus, her cancer was a different type than what Jojo has. I fall into the category of wishing I could have done things differently, but have to live with what played out. I don't know if anything would have helped her anyway, but I do regret not trying additional treatments of some kind.

I know others here will have other experiences or thoughts to help you out, so do keep us posted on Jojo and what you decide to do for him
Keeping you and him in my thoughts,
Bonnie, Angel Polly, and new crew

On The Road


Member Since:
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16 March 2015 - 10:28 pm
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Aww there's our boy! And you too, welcome home! I'm thrilled things are going great.

I can't offer a whole lot of experience when it comes to chemo since we only did metronomics . But I think the biggest things to ask yourself about whether or not to continue are:

  • How will continued treatment affect our quality of life together? If at all.
  • What will happen if we stop and things get worse?
  • Can I afford the treatment?
  • Is there an alternative therapy that might help?
  • Can the oncologists offer any examples of how other dog did in the same or similar situation?

It's really a toss up. My inclination is to tell you to follow your gut instinct and it sure sounds like you know what you want to do next so if it works for all of you, I'd say continue as long as the oncos give it a blessing.

There are so many crossroads with this disease, you never expect to deal with so many.

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

Virginia







Member Since:
22 February 2013
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17 March 2015 - 7:46 pm
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WOW! The comparions in the pictures blow my mind! You can really SEE the improvement!

YAHOO FOR JOJO!!!!clap

I can't offer any insight into treatment either. Jerry gave you some good food for thought. You already know it's about quality. It's about living as normal a life as possible and living free to be in the moment and enjoy the now!

I'm just so thrilled Jojo is doing well! You keep on rocking Jojo! You are an amazing fella' and you have very strong humans as your advocates!

((((((((((((((((HUGS))))))))))))

Sally and Alumni Happy Hannah and Merry Myrtle too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

California
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21 October 2014
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1 April 2015 - 12:59 pm
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Hello Sweet Friends-

Well Yesterday was our Treatment Re-group appointment with the UCD team- we had some good news and some bad news.  The Good News is the elbow and neck tumor's are looking very good- no growth, some shrinkage, and total stagnation of the cells and the skin has healed completely- no more ulceration's.  The cancer still HAS NOT spread to lungs or any other organ at this point and Jojo can come off of his Liver meds and Anti-inflammatory meds.  The Bad News is he weighed in at almost 90 lbs- this is about 10 lbs more than normal which means there may be some adema or swelling going on some where AND the tumor on his inner thigh has grown about 1 cm- this means that the Chemo we've had 5 doses of is not working on this area. We went through a couple different options considering we have just rounded the 6 month mark and we chose to go through another round of Palliative Radiation treatment for the thigh because it seems to have worked SO WELL on the other 2 tumor areas.  We did not initially radiate this 3rd tumor because there was not assurances that it was the same type as the others, but they know feel confident that it is in fact the same type and it's Histiocidic(SP) and the radiation obviously works better than the chemo in this particular situation.  So, we start radiation again on Tuesday of next week. We will start out with a series of 3 treatments, but will review as a team after 2 and see how things are responding.  I still feel very good about the choices we made including to not amputate originally and I am just in Love with our team at UCD.  Jojo has been having some serious melancholy days, sluggish and kind of quiet but all in all he has been a trooper!  I know he will take this next round like a champ and we'll just go a day at a time.  

Now on the Charlie front- we chose to have him seen as well yesterday  UCD General practice, mainly because he has started this chronic panting, and he's loosing serious muscle strength in his hind quarter. The Dr. took some blood panels, urine sample, and created a body map of all his lumps and bumps- We are waiting for his blood results, but everythign else came back fine and of no concerns. So, the Dr. said at this point he's getting up there in age ( aren't we all! ugh) and his panting maybe caused by his sever gum disease- Oh my never even thought of that!  So they said if his blood results come back also normal they would suggest a good teeth cleaning which would mean putting him under... on brother!  Here comes the days of  care taking of my Senior Citizensbig-grin

Much Love to you all and I'll keep you updated on jojo's next journey. 

Livermore, CA




Member Since:
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1 April 2015 - 9:10 pm
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Pretty good all things considered.  You do have your hands full!  

Keep an eye on the Tripawd Parties forums- we will be getting together in May in Mill Valley if you are interested and the pups are up for it.

 

Karen and the Spirit Pug Girls

Tri-pug Maggie survived a 4.5 year mast cell cancer battle only to be lost to oral melanoma.

1999 to 2010

 

              Maggie's Story                  Amputation and Chemo

California
Member Since:
21 October 2014
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8 April 2015 - 3:18 pm
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Friends- another quick update!  

Yesterday was Jojo's UCD appointment for our second series of Radiation treatments- this time on the thigh tumor.  This appointment took over 6 hours for some reason and boy was he worn out by the time we left.  The team also decided to aspirate one of the bigger bumps on his hip- even though we have all felt it was one of the benign growths like all the lumps and bumps over the rest of his body0 they wanted to be 100% sure.   We will go back next week for the second treatment in this series, I sure hope this works as successfully as it worked on the other two.  e

Charlie got all his blood, and urine test results and everything looks good.  The Dr. would still encourage us to move forward with x-rays and a work up on his heart murmur and if everything comes back within normal standards they would like to put him under for teeth cleaning.  John and I talked about it and we decided that what we know in our gut is that he is just an "old boy"- he's in good health and although he probably should have a teeth cleaning, at the age of 12.5 we will just live with his bad breath and try other ways of helping him wear off the stench big-grin I guess I'm just feeling like we shouldn't fix what's not broke- now that we know for sure... I appreciate the Doctors want to be completely thorough, but I think if there was truly something wrong it would have shown up in the blood or urine..

Anyhow folks, that's it for now, here's a few updated pics- Jojo back from UCD + the Tumor they marked.  And Charlie waiting for his brother to get done and hit the road home.

Love to you All

Mia and the Yellow Boys!

 

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Virginia







Member Since:
22 February 2013
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8 April 2015 - 6:27 pm
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Good to hear from you and to know everybody's doing well! I just LOVE Charley and Jojo! Mellow pups indeed!!

"Back in the day" there was no such thing as dogs getting their teeth clean, heartworm pills, dogs ate little dog food and mostly "dinner leftovers"...and the list goes on....and rhey lived fifteen, seventeen years!!.

Nope, not a fan of SOME of this .maintenance/preventative stuff...just an opinion, nothing more! I do the heartworm pillx though. Of course finances may color my "opinion" on some of this stuff!

YAAAAAAAAAY FOR CHARLEY'S GOOD CHECK UP!! I understand completely just letting Charley enjoy his "seniorhood" ! He's feeling good and that says it all!!clap

Crossing all paws for Jojo's continued healing!!

A scoop of kce cream for them both!! And a bowl for you and your hubby! You are both such good advocates for your boys!!clap

Sally and Alumni Happy Hannah and Merry Myrtle too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

On The Road


Member Since:
24 September 2009
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9 April 2015 - 10:42 am
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Hey Mia, JoJo and Charlie! Thanks for the update. I meant to respond last week but completely spaced. Just glad to hear that you and the pack are hanging tough and getting around pretty darn well, considering all of the health challenges you're dealing with. Our dogs are so inspirational aren't they?!

We have our paws crossed that the next radiation treatment will work for Jojo and the biopsy comes back with a big fat B9! And of course that Charlie continues being spunky and happy throughout his senior years. You guys are such great, caring parents and doing all you can do for these boys, 3-paws up to you!

Oh and tell JoJo to stop eating all those biscuits when nopawdy is looking. I'm SURE that's why he gained the extra weight right? He is a Labbie after all! ;)

Tripawds Founders Jim and Rene
tripawds.com | tripawds.org | bemoredog.net | triday.pet

California
Member Since:
21 October 2014
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14 April 2015 - 4:14 pm
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Hello Folks-

We had a major set back this past weekend with Jojo's thigh tumor, on Saturday the tumor just completely broke open, we had blood and tumor matter coming  out profusely  and we could not get it to stop. We spent about 5 hours in the ER and although they shaved the area, cleaned it up and confirmed that what we had experienced was in fact dead tissue and tumor matter- there was nothing else they could do for us.  No wrap, no sutures, no liquid band aid- we were asked to follow up with our Dr. on the following Monday and in the meantime keep him as clam and clean as we can. what-ever  How the heck are you supposed to do that with a Lab!  So we headed to UCD yesterday (Monday) and met with the team to look over the tumor and talk about why Joe had such a reaction to the very first radiation treatment.  The good news is that the ONE radiation treatment that he had on this tumor seems to have really worked, the mass had reduced quite a bit n size, and the mass itself seems to have changed in it density and structure.  The bad news is we are most likely now out of treatment options- it seems our road to recovery has come to an end and we will most likely have to just play it our naturally from here.crying The agreement leaving the office yesterday was to let the wound heal on its own (and it will) and then come back together to talk about what else might be available for consideration... but my thinking is to read between the lines and really there are no more options, now it's just about Joe and time.  He is my sweet sweet boy and to watch him struggle to get up the stairs and ponder about jumping up on the couch not because he's waiting for me to say ok, but rather waiting to get the energy and gumption to jump is starting to just break my heart.. I guess I'm working my way around accepting that we've done all we can do and now it's time for Jojo to run the show..

More to come.

Mia

Virginia







Member Since:
22 February 2013
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14 April 2015 - 5:21 pm
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AAnd you know what? With Jojo running the show now,I think you can still expect some more great results!!

I wouldn't try and read too much between those ljnes, Jojo has a pattern of showing everyone that he can continue to beat the odds!

He still nas great test results and this tumor did jndeed shrink! It seems to me all the nastiness is his body getting rid of that thing in it's own way.
And not doing a treatment is still a treatment! Adding holistic and nutritional supplements ..yeah, still a treatment. Being free of appointments and enjoying car rides to McDo alds...heah, still a treatment!!

Nope! Jojo isn't throwing in tne twoel at all! I think being free of prodding and poking will actually help energize him in the long run.

Shhh....just between us Jojo....you keep on s sneaking those biscuits!!

Rest up, soak up the loving and the spoiling and enjoy staying in the present with each other!!!

Love a d hugs to all!

Sally and Alumni Happy Hannah and Merry Myrtle too y

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

Westminster, MD
Member Since:
31 August 2013
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14 April 2015 - 6:27 pm
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Hi Mia,

I agree with everything Sally said......Jojo will live life on his terms. Love and live life in the moments, and enjoy every single second, spoil him to no end, and yeah, he'd love some trips to McDonalds. Plus, Jojo has a "special" guardian angel watching over him......

Sending positive thoughts and {{{hugs}}} to you, Jojo, and Charlie too!
Love,
Bonnie, Angel Polly, and new crew

Livermore, CA




Member Since:
18 October 2009
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14 April 2015 - 9:29 pm
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It's a tough place to get to, when you are out of options. It's all about JoJo now (as if it wasn't before).  Try not to anticipate when things will happen, just focus on making each and every day JoJo's very best day.

I found that when I got to this place with Maggie that I felt some relief.  No more decisions, no more vet visits, just focusing on each day we had together.

Sending strong, positive thoughts to you and your pack tonight.

 

Karen and the Spirit Pug Girls

Tri-pug Maggie survived a 4.5 year mast cell cancer battle only to be lost to oral melanoma.

1999 to 2010

 

              Maggie's Story                  Amputation and Chemo

Norene, TN
Member Since:
21 October 2014
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15 April 2015 - 8:04 am
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This saddens my heart, but at the same time there is a bit of peace. I think Karen said it so eloquently.

Not to be confused with giving up, but focusing on the quality of your time, however much that may be, is really what it's all about.

Over the weekend I saw this very sweet movie, About Time. It's a story about a father and son who have the ability to travel through time to "fix" mistakes they've made.

There was this quote at the end of the story that really struck a chord with me.

"The truth is I now don't travel back at all, not even for the day, I just try to live every day as if I've deliberately come back to this one day, to enjoy it, as if it was the full final day of my extraordinary, ordinary life."

May the time you have with JoJo be filled with joy and love as you celebrate his extraordinary, ordinary life!

xoxo

Harmony became a Tripawd on 10/21/14 (MCT). She left us way too soon on 11/1/14.

"We miss you so much; our love, our heart, our Harmony."

- Pam, Ron and Melody, Meesha, Doublestuff and Mariah Carey

California
Member Since:
21 October 2014
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21 April 2015 - 4:37 pm
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Hi Friends- Another quick update while I have a break in my workday.  

Thank you all for you words of support and positive reinforcement- Last week I just totally hit a brick wall and was feeling so defeated. I read all your posts and after I was done crying I felt so blessed to have you-- so Thank you again!

We were supposed to take Joe back to UCD today, but over the weekend he seemed to get a little pep back in his step, and his eyes seemed to have a little sparkle back and the thigh tumor seems to be drying out and getting a little bit better. So, I decided that I didn't want to interrupt the momentum and sent the Dr. a note saying we were going to take this week off.  I moved our apt. to next week so Joe could just keep focusing on his healing and not be interrupted by needles and shavings of his lovely fur. winker  I've been racking my brain about what home made contraption I can build to help him maneuver our staircase, but so far I've come up short- lol.  We've tried to just quietly let him sleep down stairs as we sneak out and go to bed, but every time without fail he will make his way up the stairs to sleep with the fam... the stairs wear him out but he's not about to sleep all by himself downstairs- Bless his heart aw-shucks

A couple photo's from last week when the poor guy was just down and out.

Until next time- Much Love to you all

Mia and the Yellow Boys!

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Virginia







Member Since:
22 February 2013
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21 April 2015 - 8:47 pm
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Jojo, you are just as handsome and as smoochable as ever!!!

I think your decision to ppstpone that appointment was spot on! Jojo's feeling good, things are healing better, so yeah, just relax and enjoy!

I wish I could find a solution for getting Jojo upstairs with no effort. My Happy Hannah (a rear leg amp. And 120 lbs) never could go up the stairs to sleep in bed with me. She jated it, I hated it. Of our fourteen months together, I slept on the floor beside her the majorityn of the time (except when my backache became too much. Eventually I was able to buy a cheap twin mattress on the floor and sleep with her downstairs. Her Big Barker Bed was far more comfortable than that mattress.

One thing I thought of but could never do it because she weighed so much, but maybe you and your husband coukd do this together. Giet a nice piece of foam rubber. Lay it on top of a blanket. Have Jojo lay in the roam rubber. Kind of wrap him up in a bit of a bundle and you and your husband PULL him up the stairs while he's nestled in his "sack"...Kind of like pulling up a sack of potatoes floating over the stairs. I just read what I wrote...and didn't understand it!!! If only I could write what I'm saying!!!clown

Thanks for the update! Sounds like Jojo is loving his life and is very content...and that's what it's all about!! Jojo is making it clear he is doing just fine and continues to show everyone that he does not have a time frame on his butt!! You keep on running the showJojo! You're doing a great job of it!!way-cool

Keep on keeping on Jojo!!! We all love you...and Charlie too! And your humans...oh heah...love them too!

Sally and Alumni Happy Hannah and Merry Myrtle too!

Happy Hannah had a glorious additional bonus time of over one yr & two months after amp for osteo! She made me laugh everyday! Joined April's Angels after send off meal of steak, ice cream, M&Ms & deer poop!

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